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My fun sick life - what a headache

When I was 15 years old I started to get hard headaches. I don't remember that I'd had that much headaches before that year. Mostly just with flu or allergies. I was often on school nurse's extra room resting in dark, when it started suddenly. Somehow doctor's thought that it was somehow abnormal. Not tension headache or migraine. At that spring I end up to get really sick and slept almost three days. I woke up just to toilet and drank something while walking back to bed. On that third day I was admitted to hospital. It was kids ward! Age limit was just view months away and I was there with 2-5 year old kids. There was extra space, so I got my own room.

It was my first time staying in hospital longer then a day. Before that I always were able to go back to home for nights. I was way too nervous about it, then I should have been. I just watched all days Disney movies and went time to time to different examinations. I had brain MRI, they checked my heart and blood circulation, did I had narrowed veins in my neck… I was there three days and kept passing out, if I stand too long. And that too long wasn't a long time. Four days of testing, showed that problem was medication. that they had made me to eat, while they were thinking that it's something else then "normal" migraine". Passing out stopped with that medication and when nothing else wasn't found I got migraine diagnosis. In next year I ate all possible medications, before I got the one that worked.

Next station was, that I feint while blood test and didn't wake up from it well. I haven't had ever problems with blood tests and never felt bad in anyways. Now everything was blurry and I couldn't sit. I was so week. The ambulance came to pick me up to ER. Doctor's were asking what drugs I had taken. They were sure that it was the case. It's not only time then I've end up to drug and pregnancy tests in ER or hospital. Always without reason. When they saw I was clear from everything they tested migraine medication and it worked. It took long time before I believed the diagnose. I had migraine without headache. Now I know for sure that it's the case. Same situation happens in my brain then in regular migraine, but for some reason I don't get the headache. I get every other symptoms and way more worse, then with regular migraine. My theory is that it's about the fact that headache isn't warning me to take my medication so it get as bad it can, before I get what is happening. With normal migraine, medication can help so much that it doesn't effect to my day. With migraine without headache, I feel awful even in next day. I'm nauseous, vomiting, weak and grumpy.

Couple years later I started to get sight problems. I saw random colorful spots. One area of text could change to different color then text was and move with my eyes. Then one day I lost my sight from the other eye. It was the day Michael Jackson died. It was holiday here. Everyone was somewhere else having fun and I was sitting in doctors waiting rooms, watching that same news over and over again. First doctor send me to Universal hospital's eye specialist. After whole day with examinations, he said that I have something called "eye migraine". When I have migraine, blood vessels spasms and limit the blood flow. That made it, that when it was happening, blood didn't got to my eye.  It still happens time to time, but it's more odd, then scary.

Then about ten years went okay. I had more migraine then most people get, but medication worked well. Hard part was when the only working medication was on one point 10€ per tablet and I had 2-5 episodes per week. It's not fun way to use all your moneys, but like often with health problems, you can't help it. You just need that help, what ever it costs. Then I started to get a month long episodes. It was about 30 days with multiple migraine episodes per day. It happened every spring and fall couple years. I've read that it can be about light changes, but thankfully it got better it's own in a time. Story about medication to prevent me from having migraines is so long that, it's whole other story time.

Last try was Botox all over my head and shoulders. It was disaster. It was couple months like with migraine without headache, but with headache. I didn't felt when migraine was coming, so I didn't ever took the medication early enough. I don't usually vomit even weekly with migraine, but at then it was daily. Didn't want to give the second change for it. I have still way too much migraines. Easily 3-5 per week. Sometimes twice. Everything has tried and I've seen every possible specialist. My medication works still well and isn't that expensive anymore. I know there is some new medications coming, so will see what is next chapter with my migraine diary! More in Twitter @FromMadeByMeri




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